EB is so unpredictable… Less than 12 hours after Darcie’s 1st birthday, we ended up in hospital. Through the night she was in a lot of pain and wouldn’t open her eyes. Even with pain meds, she was still so uncomfortable. There’s a chance she has a corneal abrasion — essentially a blister in the eye. If that’s the case, she may not open her eyes for a few days until it heals. It’s hard to know for sure, because we can’t see her eyes right now. On top of that, she has stridor — a blockage or narro
1:01
EB is so unpredictable… Less than 12 hours after Darcie’s 1st birthday, we ended up in hospital. Through the night she was in a lot of pain and wouldn’t open her eyes. Even with pain meds, she was still so uncomfortable. There’s a chance she has a corneal abrasion — essentially a blister in the eye. If that’s the case, she may not open her eyes for a few days until it heals. It’s hard to know for sure, because we can’t see her eyes right now. On top of that, she has stridor — a blockage or narro
211.3K views6 months ago
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Short videos

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